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Caring for Children Who Have Severe Neurological Impairment: A Life with Grace (A Johns Hopkins Press Health Book)

Julie M. Hauer MD




[PDF.qt97] Caring for Children Who Have Severe Neurological Impairment: A Life with Grace (A Johns Hopkins Press Health Book)

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 | #467808 in Books |  Julie M Hauer |  2013-06-12 | Original language:English | PDF # 1 |  9.25 x1.12 x6.13l,1.55 | File type: PDF | 480 pages

 | Caring for Children Who Have Severe Neurological Impairment A Life with Grace A Johns Hopkins Press Health Book

||1 of 1 people found the following review helpful.| Must have for parents of children with complex neurological problems|By Redgreen|I have two sons with an unknown neurologic genetic condition (SNI) and this book has been so amazing it brings tears to my eyes just writing this review. My oldest has been in pain his whole life and although I suspected it, I never knew what to say to my physician who had no clue how to treat it.| ||"This unique book provides detailed scientific information that is carefully explained in a gentle and thoughtful manner. This book provides a much needed resource for families struggling to stay informed and make decisions for their children. It also is a ne

Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills.

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